Two weeks ago I celebrated my 32nd birthday. Now for some it might be just another birthday, another year where you’re getting older but for me it’s a huge accomplishment. It’s a huge accomplishment as a black man because there are many young men who don’t get to reach my age so I’m thankful and blessed that I get to see another birthday. As a wheelchair user it’s an accomplishment because I’m at a point where I’m starting to figure out my life.
It’s funny to me that it’s taken this long to figure out my life. I remember as a teen planning what my future was gonna be like. I was gonna go to college, get a great job, be married, and have children but as I’m typing this, that hasn’t happened and I have no regrets about that. Now that I look back, having that plan is just plain boring to be honest. I never thought about what twist and turns that would come my way, the unexpected curveballs that would be thrown in my direction, and meeting people who would change my life.
The Wheelchair Chronicles has been the starting point for where I’m figuring out who I am as a person and has taken me to places I’ve never imagine. I never thought I’d be apart of an amazing group of people who want to be advocates and fight for and with people with disabilities. I never imagine that I would have an article in the Chicago Sun-Times telling my story and talking about my film and that same article would get me in touch with the Artistic Director of the Joffrey Ballet. Now I’m apart of another group of wonderful people who have a passion for sharing the artistic work of women, women of color and people of color with disabilities.
At 32, I see myself as a wheelchair artist, activist, advocate, and an ambassador. I want to continue to share my story with the world but I also want to fight and stand with my fellow disabled brothers and sisters. As an ambassador, I want to be able to network and be apart of other groups and committees in the city and share my story with them as well. People with disabilities are gravely misrepresented in media and I’m out to change that. I might be a one man army but you know what, it only takes one to bring people together and turn that one into hundreds, hundreds into thousands and thousands into millions of people willing to fight to be represented. Now that I’m starting to figure out my life, I’m now a very dangerous man because now I know what I’m capable of.
I saw this quote scrolling through tumblr and this made so much sense to me and also in regards to my film. I want to show the world through this film a more real representation of a disabled person and that I have my own identity as a person with a disability.
“The history of the portrayal of disabled people is the history of oppressive and negative representation. This has meant that disabled people have been presented as socially flawed able bodied people, not as disabled people with their own identities.”
– David Hevey, 25 March 1992
This has been such an amazing week for me. It started off on Monday when an article I wrote in collaboration with Access Living was published in the Chicago Sun-Times. Everyone I knew was proud of me for my work and now I’m finding out some prominent people in Chicago have read it as well and that’s so awesome. I forgot to share it with you all and I apologize for that, so I’m posting a link to the article at the end of this post for you all to read. I hope you all enjoy it.
It’s been a while since I wrote on my blog. A lot has happen since I last wrote and while I’ve wanted to write about my experiences, I just haven’t been motivated to write. On one hand I’ve wanted to talk about what’s been going on in my life and other times I’ve had nothing to say. That sucks for me because the main purpose of this blog was to share my experiences with you all.
It feels like I’m in a funk, not depressed or anything like that but just not in the mood to do anything. With the weather being bad, I don’t feel like going outside (unless I really have to), I don’t want to get out of bed. My sleeping patterns have been fucked up, and most of all, I’ve been quiet especially when it comes to keeping you all updated about my film (which I’m still working on), my continuing work with occupational therapy, and working on going to grad school.
2014 for me has gotten off to a rocky start. Hopefully things will turn around! No…I know it will turn around. I will get out of this funk and continue to work hard to achieve my goals and be a success. I won’t let this rough patch get me down even further.
So today was my last day of doing physical and occupational therapy at the DayRehab Center and this was a sad day for me. The reason being is that I’ve grown to love this place. During the time that I’ve been at the center, I’ve met so many lovely people who have helped me get better and stronger physically. They’ve gotten to know me as I’ve gotten to know them and plus, I’ve had a lot of fun here as well.
In my last few posts, I’ve talked about the different therapists that have helped me during my time here. From Joanna (who still owes me a game of Battleship), to the “torturer” Megan. While I call her the torturer, she has really helped me with my wheelchair transfers and rolling techniques in my bed. I can’t forget the two lovely women, Grace and Bridget. I want to thank them for being so welcoming to me at the center. I was really nervous my first time there but they made my experience hard-working but fun in the process and I’ve enjoyed the time I’ve worked with them.
There are so many others at the center that have been so awesome. Sarah, the lovely Stephanie, Liz, Vimmi, Sue, Allie, Christina, the other Megan’s, and Allison’s. I know I’m forgetting a few people but you all have been so awesome to me and I will never forget you all and the hard work you put me through. All of you are amazing people.
Now that my time at the center is over, the next phase of my journey is about to take place as I’m going to do occupational therapy at RIC and then work at the fitness center near RIC. I won’t forget the time I had at the DayRehab Center.
It’s been over a month since I started doing physical therapy and occupational therapy at the Day Rehab Center and it’s been a lot of hard work. The work has been tough but I’m enjoying myself and having a good time. While my therapy has been success, I’ve has to once again put my film on hold and that’s something that has bothered me.
I was upset that I couldn’t finish my film because I had put myself under a deadline to have The Wheelchair Chronicles completed and sending it in to different film festivals across the country but that’s not gonna happen. At first, I was pissed because that meant I had let a lot of people who have supported me and this film down but then after getting some words of wisdom, I realized that my supporters will completely understand that due to working at Day Rehab and dealing with other issues, people will understand that my film is not finished.
I forgot that I have the best supporters in the world. People who love me and actually care about me and they are very understanding as well. I have to remember that and now I’ve also gained a whole new set of supporters from Day Rehab. I’m no longer putting myself on any unnecessary deadlines. My film will be done when it’s finished. Now I can relax and focus on giving you all a great documentary about my life in a wheelchair.
So Monday I started my first full week at RIC and my therapy was typical of the first couple of sessions but during Monday’s session I got a chance to get to know about my therapists. In my first session of the morning I got a chance to meet Allie, a new therapist that just started that morning. We hit it off very well, I found out that she was from South Carolina and had just moved to Chicago just five months so she was still getting use to the city. We talked for a little while and she was telling me that she was preparing for winter and I told her that winter here ain’t no joke so you better have all of your equipment to handle winter in Chicago. Well she told me she was “ready” but we’ll see as we get closer.
My second session was with the torturer Megan who once again put me to work. This time we were doing sit-up type exercises to work on my back and shoulder. Then we did forward sit-ups first with a medicine ball that worked my forearms and then second set of forward sit-ups were assisted by Megan and I’m glad she did because this second set involved bending completely forward (something that did frighten me because I rarely do that) and using my back muscles to bring myself back up, it was rough but I did it. To finish off my session we did a couple of transfers back and forth between the mat and my wheelchair and that ended my session with the torturer. I call Megan that but in all honesty she works me hard and I always feel sore after working with her and that’s a good thing.
My final session was with one of my favorite ladies Grace (no Bridget this time *sigh*) and Christina and for this session we did some simple tasks like working with buttons (buttoning and unbuttoning) and using my hands to roll coins in my hand and put them in a bank. During this session I found out that Grace is originally from Northern California and moved to St. Louis before coming to Chicago. She told me a funny story about experiencing her first winter in St. Louis where she mistakenly used table salt to actually salt the sidewalks. We both shared a laugh and I told her it was an honest mistake but you did learn your lesson the hard way and now she knows. To finished off the session I showed Grace and Christina how I put my jacket on and that was the end of our session.
I put in a lot of work yesterday but I got a chance to know my therapists and I had fun and I look forward to continue my therapy sessions.
Day 2 and they’re already trying to kill me! I worked a lot harder today than my first day as expected. This time I was able to get here thirty minutes early so that really calmed me. I was more comfortable being around everyone and that made me feel good.
This time I started with occupational therapy and met Joanna for the first time to do some arm stretches. I was once again put on my back and I wasn’t hurting like I was the first time but it was still painful. Joanna made me feel very comfortable by helping me relax my legs (which were all over the place). Once that was all over, I had a quick break (still on my back by the way) and waited for the torturer Megan.
I know that when she shows up I’m gonna be put to work and the fun truly begins. Today we worked on rolling on my side and that was tough as hell. It’s difficult for me to roll from one side, then laying on my back and doing the same process over and over.
The torture was just getting started as I was rolled onto my stomach and had my back stretched out fully. The pain was excruciating but as time went on the pain went away little by little. Megan continued the previous stretches from last time and our torture session was over.
After a short intermission, then it was time to work with my two favorite ladies Grace and Bridget. We did some arm exercises that were tough as hell. I was laying on my side and alternating between my left and right arm which made the exercises a lot tougher.
I’ll tell you all something, after my three hour workout I was very sore but I wanted to keep going. I felt like I still had more to give and I want to get stronger. I understand that I have to rest in between therapy sessions. I can’t wait to get up on Monday to do it all over again.
First off, I am so sorry for not posting anything in a long while. A lot has happen in my life and I just didn’t have the time or energy to write on my blog.
On Wednesday I started a new journey that’s separate from my film. I started my first day doing physical and occupational therapy at the Rehab Institute of Chicago. I’ve trying to do this for some time now and after years of holding off on it, I took a big step in improving my life. After talking to my doctor at rehab a few weeks back, she thought that this would be a good idea to get back into therapy especially after I told her about the pain I’ve been experiencing.
The first day kinda hit an early snag when the transportation was an hour late in picking me up (I learned later that he wasn’t late at all and that they wanted to make sure I was ready early). When I arrived there with my mom, I was really nervous because this was my first time there and I didn’t know what to expect. However, when I arrived I was welcomed with open arms and it helped ease my fears.
When I got there I immediately met my two physical therapists Grace and Bridget, two very lovely women who gave me the tour of the place before sending me into a room. The early part of my time there was spent answering questions (you know the usual stuff when you register for the first time). Most of the questions were kinda silly but I had no trouble answering them. I got a chance to get to know them and explain to them what I can and can’t do.
After the Q&A session was over it was time to start my occupational session with my therapist Megan. It was time to get down to business. After a similar Q&A session, Megan started on a few tests to see how flexible I was. It started off with a simple check of my ankles and then it was time to get out of my chair and lay on the mat right on my back. After getting a few pointers on how to maneuver out of my chair, I laid on my back and experienced a sharp pain in my lower back because I haven’t laid straight on my back in a long ass time. Megan did a few stretches and tests on both of my legs, I was thrilled when it was all over to sit back up and relax. Oh, during that time I met a lovely nurse named Sue who only took my blood pressure and I told her I liked her because she was gonna be the only person that’s not gonna put me to work.
After a quick break and signing a lot of paperwork, it time to work with Grace and Bridget again. Thus they worked with me on getting back in my wheelchair (which was a huge mission by the way). After we got back in the chair we did a couple of interesting tests. The first was the hand strength test. They give you this like gold handle and you have to squeeze it very hard (by the way this thing came in this protective black case for some strange reason like it was some rare treasure). The next test was to see how quickly I could put these tiny round sticks and put them in a hole and take them out as fast as you can. I did it with my hands and it seems that I’m more faster with my left than my right. Once the test were over my first day came to an end and it was time for me to leave.
My first day was a success. I was a little nervous at first and they worked me kinda hard, it was great. I know there’s a lot of hard work ahead of me but if anyone can do this and succeed is me.
While I’ve been dealing with my wheelchair problems the past couple of months, I’ve learned that the majority of wheelchair manufacturers don’t test their power wheelchairs before they’re distributed to the public. This makes no damn sense! So basically I’m playing the role of wheelchair tester in the city of Chicago and I think I need to be paid for being a tester. Now it makes sense why my wheelchair has broken down on me only after year because no manufacturer took the time to make sure everything is in working order.